Not Invisible Ehlers-Danlos Syndrome Awareness
|
Not Invisible, Ehlers-Danlos Syndrome is My Nonprofit Organization dedicated to shedding light on Ehlers-Danlos Syndrome (EDS), an often invisible but life-altering condition. I strive to raise awareness, provide support, and create a sense of unity among those living with EDS, letting them know they are not alone in their journey. My mission is to foster understanding, advocate for improved care, and empower individuals affected by EDS to lead fuller lives.
EDS is a group of inherited disorders that affect your connective tissues, primarily skin, joints and blood vessel walls. Connective tissue is a term given to several body tissues that connect, support, and help bind other tissues. People who have EDS usually have Symptoms that consist of overly flexible joints that can dislocate and skin that's translucent, elastic, and bruises easily. In some cases, there may be dilation and even rupture of major blood vessels. Treatment helps manage symptoms and monitor for complications. Options include drugs, physical therapy, and sometimes surgery.
|
|
Ehlers-Danlos Syndrome Proclamation Acceptance
|